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Too Late to Die Young: Nearly True Tales from a Life, by Harriet McBryde Johnson
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With a voice as disarmingly bold, funny, and unsentimental as its author, a thoroughly unconventional memoir that shatters the myth of the tragic disabled life
Harriet McBryde Johnson isn't sure, but she thinks one of her earliest memories was learning that she will die. The message came from a maudlin TV commercial for the Muscular Dystrophy Association that featured a boy who looked a lot like her. Then as now, Johnson tended to draw her own conclusions. In secret, she carried the knowledge of her mortality with her and tried to sort out what it meant. By the time she realized she wasn't a dying child, she was living a grown-up life, intensely engaged with people, politics, work, struggle, and community.
Due to a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With help, however, she manages to take on the world. From the streets of Havana, where she covers an international disability rights conference, to the floor of the Democratic National Convention in Chicago, to an auditorium at Princeton, where she defends her right to live against philosopher Peter Singer, she lives a life on her own terms. And along the way, she defies and debunks every popular assumption about disability.
This unconventional memoir opens with a lyrical meditation on death and ends with a surprising sermon on pleasure. In between, we get the tales Johnson most enjoys telling from her own life. This is not a book "about disability" but it will surprise anyone who has ever imagined that life with a severe disability is inherently worse than another kind of life.
- Sales Rank: #1000562 in Books
- Brand: Brand: Henry Holt and Co.
- Published on: 2005-04-08
- Released on: 2005-03-10
- Original language: English
- Number of items: 1
- Dimensions: 8.60" h x 1.07" w x 5.78" l,
- Binding: Hardcover
- 272 pages
- Used Book in Good Condition
From Publishers Weekly
It's hard to believe that one Charleston, S.C., woman, from the seat of her wheelchair, has faced off President Reagan's Secret Service detail, disrupted a National Democratic convention, joined disability advocates in Cuba and—for 13 years straight—protested the Jerry Lewis muscular dystrophy telethon. Indeed, folks with a sentimental attachment to "Jerry's kids" should start at chapter one, where Johnson explains how it felt as a youngster to watch a televised "childhood death sentence" every year. Johnson, who was born with a congenital neuromuscular disease, wants kids with disabilities to grow up "prepared to survive," not merely waiting to die. Equally problematic for the spirited lawyer are media heroes like the late Christopher Reeve, who revived "telethon melodrama" by displaying himself as "a disability object, presumably tragic but brave, someone to gawk at." Johnson, whose law practice specializes in disability advocacy, has a personal assistant, a motorized wheelchair and a supportive circle of family and friends that make her active, satisfying life possible. Readers inclined to feel sorry for people with disabilities, to offer them prayers or a pat on the head—Johnson has endured both—should spare them the very real burden of providing "disability awareness training to everyone who happens by," and read Johnson's feisty book instead.
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.
Review
"Too Late To Die Young is a wonderful mix: a keen mind, exuberance, activist politics, along with a special brand of Southern women's wit."-Adrienne Rich
About the Author
Harriet McBryde Johnson has been a lawyer in Charleston, South Carolina, since 1985. Her solo practice emphasizes benefits and civil rights claims for poor and working people with disabilities. For more than twenty-five years, she has been active in the struggle for social justice, especially disability rights. She holds the world endurance record (thirteen years without interruption) for protesting the Jerry Lewis telethon for the Muscular Dystrophy Association. She served the City of Charleston Democratic Party for eleven years, first as secretary, then as chair. She is a regular contributor to The New York Times Magazine and to the disability press and lives in Charleston, South Carolina.
Most helpful customer reviews
5 of 5 people found the following review helpful.
Read this book!
By dewlaw
This collection of autobiographical stories and essays is compelling, startlingly honest, and a real page-turner. I did not want it to end, and I want to know what happens next. Harriet is unconventional, funny, charming, sharp-witted, and has a true Southerner's ability to spin a yarn. Her account of meetings and conversations with Peter Singer, Princeton professor and proponent of the idea that parents should have the right to extinguish the lives of profoundly disabled children, is fascinating, chilling, thought-provoking and haunting. Admittedly living with the kind of disability that Professor Singer believes warrants extermination at birth, Harriet punctures the underlying assumptions that inform such beliefs--that disabled people are "worse off," that their quality of life is diminished. Harriet herself explodes the stereotype, and it should be noted that she is, most emphatically, NOT one of Jerry's kids. But this is not a book merely about disability, or disability rights. It is a good yarn, told by an enchanting writer, about interesting people, and I for one hope there are more stories on the way.
11 of 12 people found the following review helpful.
Voice of Disability Rights
By Anonymous
This has been a good year for disability rights in terms of publications. First, Mary Johnson published Make Them Go Away and now we have Harriet McByde Johnson's much anticipated Too Late to Die Young. Read together these texts provide a powerful one two punch for the disability rights movement in an era which has seen the courts gut the Americans with Disability Act. Both authors have been champions and leaders of the disability rights movement and each are gifted writers.
Harriet McBryde Johnson is a gifted story teller--although I wanted to savor the text and make it last I was too spoiled to do so. I read the book cover to cover the day I received it. Now, I am going back to re-read each and every chapter. Each story told resonates at some level regardless of the subject matter. What truly struck me the most was that my life is not so different, that I am not so unsual, and that the bigotry and discrimination I encounter on a daily basis is no different from what other disabled people face. I am not the only one that is subjected to unwanted attention and grossly inappropriate comments. I am not the only one that found Christopher Reeve comments about disability offensive. I am not the only one who is treated poorly when I travel on an airline. In short, discrimination against the disabled is rampant and it is heartening to know others are experiencing and fighting against this. To know that I have two gifted authors on the side of equal rights lets me not only feel better about myself a feel less alone but know the future, in spite of the courts, will be better than the past.
0 of 0 people found the following review helpful.
Three Stars
By Judith A. Maloney
Depressing.
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